Sep. 7, 2016

Let's start taliking about mBC.

I feel like I have to update today as it has been 12mths since I decided to share my story with all of you and so much has happend for me, my family and my new community of patients with mBC and those organisations working to raise awareness and services for us.

So much has been happening over the past few months to connect patients with mBC and start to get the public talking about it also. As you all know I have been working with Europa Donna Ireland(EDI) for their facebook group Connect MBC network and it's terrific we are always looking for members so if you know anyone who sufferes from mBC point them in that direction.

I have also been working with Pfizer healthcare and we are delighted to be launching their add campaign next week. This will be a short 7min clip including my good self and a couple of other patients talking about life with mBC. (this will be launchednext Tuesday). This is just the start of the raising awareness and educating people about this disease. We are fast approaching October which is Breast Cancer awarness month but unfortunatlely for those of us we uncurable BC we are completely forgotten throughout this well no more. This year we are coming out fighting showing that it is not easy to live with the disease at times but that we are living. We are doing ordinary every day things like taking the kids to school, cooking the family dinner. We are not your sterotypical cancer patient with no hair, pucking into the toilet so ill we are not able to go out into the real world. We are all those things from time to time but mustly we are ourselves and we need support throughout it all not just the bad times.

mBC patients struggle with side effects all of the time, from fatigue to pain to bowel issues but that's all ok once we gain another day with our family and friends. I always say bring me flowers while I can still smell them, come visit me while I can see you, come help while I need it. It's too late doing all of this when I'm gone.

I look forward to sharing the Pfizer add with you all. I am so glad to have EDI's facebook group and from the end of Sept I will also have Marie Keatings 6 week Positive Living Program. Thanks to everyone involved for all their hard work and allowing me to be part of this new world for mBC patients and I look forward to being here for years to come still educating and raising awareness. 27mths metastatic and counting.